surgery

[magnumcyclonex 136]

Sorry to read that you've had to go through such trouble. I hope the surgery was a success and the recovery will be a speedy one. I'm sure you've got many more years to live and many RC projects to complete. But just in case, do you have anyone to entrust your RC collection to in the future?

[Torhaantje 609]

Wishing you all the best on a good recovery.

Take care!

Best regards, 

Rick

[Rinskie 1321]

One thing super interesting is I had my first dream in about 20 years. I've secretly thought I was losing my capacities in one way or another in part of the loss of dreams. I used to have a vivid dream life with lucid dreams and from time to time astral projection although I wouldn't mess with that stuff anymore point is, I lost a capacity that seems to be back if only for one night. My hands are less shaky too it's really quit remarkable. Once the sever pain and nausea go I might just pass as a human again. 

[MadAnt 859]

@Rinskie

It's a scary thing when you first find out, they found my brain tumor after I was in a car accident. My family and friends were worried and I'm greatful and love them for their support. Thank God for those neurosurgeons, they really know what they are doing, they are some of the best doctors you will find. Things will get better every day for you, once you are healed up enough they might have you start radiation therapy to remove the small leftover bits of the tumor.

For now take it easy, enjoy some RC's if you can. Stay in motion but be careful with how you move. 

Wishing you a speedy recovery,

MadAnt

[Mad Ax 11388]

16 hours ago, MadAnt said:

Thank God for those neurosurgeons, they really know what they are doing, they are some of the best doctors you will find

Absolutely.  I have no experience myself but my mum had brain surgery 25 years ago and has also had spinal surgery.

A few years back I randomly started reading Do No Harm by Henry Marsh, a British neurosurgeon.  I was blown away by what can be done.  A thoroughly moving book.

[Krustybus 233]

20 hours ago, Rinskie said:

One thing super interesting is I had my first dream in about 20 years. I've secretly thought I was losing my capacities in one way or another in part of the loss of dreams. I used to have a vivid dream life with lucid dreams and from time to time astral projection although I wouldn't mess with that stuff anymore point is, I lost a capacity that seems to be back if only for one night. My hands are less shaky too it's really quit remarkable. Once the sever pain and nausea go I might just pass as a human again. 

Focus on the positives :-) 

All the best with the recovery, I hope that you continue to improve

[Badcrumble 4432]

Wishing you a strong and speedy recovery @Rinskie.

I'm waiting for MRI results for a meningioma at the moment. Mine is tiny so I think they'll just say they'll have a another look in a year or so. 

Enjoy the MB-01 Swift when you get there.

[Tamiyastef 3073]

Wish you a speedy recovery!

[OnTheTrail 1417]

Glad to hear you and your doctors have you on the right track.   Thoughts and prayers for a speedy recovery as well as a recovery filled with lots of RC builds!  

[Rinskie 1321]

Well it's been two weeks out since the cutting and grinding and I went to my my first post op check up yesterday. Nothing major, had to adjust my meds a little. The doctor said she did notice slight movement in my left eye lid so she expects full recovery of my left side facial muscles but that could be as much as 2-3 months down the road. As it stands now the left side of my face is paralyzed which sucks a lot more than I thought it would. I initially thought it would be slightly funny but it's not. Nothing about it is even remotely funny. While I can see with my left eye, the focus goes in and out super fast and its inability to adjust to light means I have to wear an eye patch. Being outside and not being able to close your eyelids has to be the most painful/uncomfortable thing I've ever experienced. Yesterday my poor right eye was trying so hard to close the left eyelid due to the bright light that I lost my balance. All in all I am glad the tumor is out but this might be a situation where the juice to squeeze ratio might not be favorable. 

 

I haven't made any progress on the MB apart from the initial build but my impressions are VERY positive. I did manage to mess up a cut on that super sweet Swift body so now I've lost a bit of motivation to finish it. Turns out I should have cut it out before the operation or wait a long time after. I guess I will just have to move it back to 210 and get a Mini Cooper when they are available. But the chassis is a super fun car to drive in FF. 

[MadAnt 859]

You are making progress, so that is good. I've heard sucking on lemons can help with the temporarily paralyzed face muscles, I assume it gives the senses and muscles something to react to work like a therapy treatment for the face or something. Keep on doing what you need to do and every day you will be a little bit better.

Also, it's also good to hear that it has not completely stopped you from messing about with rc projects and having a little bit of fun. Don't worry too much about the lexan body, even us with good working eyes mess it up sometimes. 

Anyway, it's good hear an update, wish you well and continue to update us.

 

[ucacjbs 175]

Glad to hear there’s progress, and I hope you can find a way to make the facial paralysis more bearable. 

[GTodd 1609]

Well wishes sir, get some legos and rc kits, and get working on that hand an eye coordiantion. You got this!

[Tamiyastef 3073]

Progress is good! Recovery is always way slower and more frustrating than expected in my experience. What helps for me in a recovery is write down and or take a picture of myself every 2 weeks or every month and then compare those. When reading your own words or see the difference in the pictures really helps me to keep my spirit up.

[lupogtiboy 531]

Glad to hear you're on the road to recovery, that would scare the crap outta me! 

[jonboy1 3784]

It sounds to me like you're doing great @Rinskie - keep positive! It's amazing how much a positive outlook can have on recovery.

I hate to keep mentioning it, but my sister in law had her brain tumour surgery around the middle of September, and hers was about 1/4 of the brain and more complicated than they expected. When she came round she couldn't move any of the right side of her body or talk. She had sensation in her right side, but no control. She was walking with assistance within a few weeks and has made steady progress with movement and speech since. Now she is walking and moving completely normally (well, not 100% her arm but I'll come back to that) and her speech is 90% there, still a few words she can't find, but huge improvements from the beginning.

What @Tamiyastef says is very, very important. Having a non-biased view of where you were, and where you are now is vital. It's so easy to think you aren't getting better, it's taking forever and generally get negative about your progress. Having something tangible to prove exactly how far you have come can be a huge boost to your recovery both mentally as physically. And that's something to appreciate - it isn't just a physical recovery you are making, it's psychological too. You have been through a HUGE ordeal and it has literally messed up your head. There is so much fixing going on in your head - be kind to yourself. My sis is getting counselling provided by the hospital, is that something you have access to? 

One thing she has been really surprised by is her lack of energy, and apparently that's very common - again, your brain is working flat out trying to fix things and remake connections and it uses a lot of energy. So again, be kind to yourself, and if you need to rest, rest.

Going back to her arm - when she was in hospital she had a huge seizure (it was one of these that signalled something was wrong in the first place) and somehow spasmed out over the side guard of the bed and onto the floor. Her physiotherapist thinks she damaged her shoulder and nerves falling on it, which is why that hasn't recovered fully yet, and isn't anything to do with the surgery itself.

Keep going @Rinskie - we're all rooting for you and know you'll be back to 100% very soon  ❤️

 

[Rinskie 1321]

@jonboy1

Thank you for the updates on your sister. I hope she does better each passing day. All in all I know I am better off today than I was a month ago. Actually the list of improvements is quite large but there is always a but. The things that don't work now are very hard to work around and the waves of super heavy depression just pops up out of nowhere and is cripplingly intense. My tumor was very large and it took up all of my ear canal. Not to be gross or dramatic but in order for them to gain access to the tumor they had to grind away a portion of my skull around my ear canal away so they poke and cut on the tumor. The tumor had to come out regardless of any downstream complications or discomforts so all the little complaints are just words in the wind. It was at that point where it was messing with my every day life functions.It was either going to come out or I would have been buried with it soon.

The other morning I felt my face for the first time in about 6 months. My fingers knew when they were touching my cheek and my cheek knew when my fingers were there. Little things like that are such a miracle and I am thankful to God for it. Also I have been hanging he most intense and vivid dreams it's unreal. This morning I actually woke up with stomach anxiety because I had a flight school check ride in my dream a few hours prior. I haven't swung a propeller in anger in over 25 years. This is super cool to me because dreaming was a huge part of my life in my teens. I know that may sound odd but lest night I took a drive out past Las Cruses NM just to see darks skies. This is the kind of stuff I could do on a nightly basis and when it stopped it left like a part of me died. 2-3 days after I came home I had my first dream in over 20 years. I was so happy and as silly as that sounds, if that's all I get out of the surgery then I consider it a win. I know the pain in my ear canal will heal, I know I will be able to drive again soon. I know all the little things that bring me love and comfort will be back in full soon enough and more importantly, I know my wife will be right next to me the entire time helping me along the way. 

As far as RC goes, as much as I try to find motivation it's hard to come by. In the American NE it's been very windy, cold and snowy. I haven't been able to get out and drive my newest little heart throb in the parking lot but I do drive it everyday inside the house. I did order a ball diff for it today because it seemed like the right thing to do. Guys, please don't get me wrong, I am in a great place now it just has a few little unwanted complications.

Odd positives??? I can eat bread again for some reason the doctors can't explain and I am down 13 pounds although I would not recommend tumor removal as a Diest plan.